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National Organization for Rare Disorders
Results: 62

#	Item
51	News from Nord An update for our members and friends Fall[removed]Alone We Are Add to Reading List Source URL: www.rarediseases.org Language: English - Date: 2012-12-18 11:57:21 Pharmaceutical sciences Drug discovery Pharmacology Rare Disease Day European Organization for Rare Diseases Rare disease Prescription Drug User Fee Act Orphan drug National Organization for Rare Disorders Health Medicine Pharmaceuticals policy
52	The National Organization for Rare Disorders NORD Guides for Physicians #12 The Physician’s Guide to Add to Reading List Source URL: www.rarediseases.org Language: English - Date: 2012-12-18 11:57:21 Rare diseases Genodermatoses Congenital disorders Treacher Collins syndrome Cleft lip and palate Craniofacial team Craniofacial surgery Micrognathism Malpuech facial clefting syndrome Health Syndromes Medicine
53	The National Organization for Rare Disorders NORD Guides for Physicians #11 Physician’s Guide to Add to Reading List Source URL: www.rarediseases.org Language: English - Date: 2012-12-18 11:57:21 Medicine Homocystinuria Homocysteine Vitamin B12 Methionine Methylenetetrahydrofolate reductase Hydroxocobalamin Trimethylglycine Vitamin B6 Chemistry Nutrition B vitamins
54	National Organization for Rare Disorders Remarks before the FDA Endocrinologic and Metabolic Drugs Advisory Committee Silver Spring, Maryland November 19, 2013 Good afternoon. My name is Diane Edquist Dorman, Vice Presid Add to Reading List Source URL: www.rarediseases.org Language: English - Date: 2013-11-22 12:36:21 Rare diseases Drug discovery Orphan drug Pharmaceuticals policy Morquio syndrome Pharmaceutical industry BioMarin Pharmaceutical Mucopolysaccharidosis National Organization for Rare Disorders Health Pharmaceutical sciences Medicine
55	National Organization for Rare Disorders Remarks before the FDA Peripheral and Central Nervous System Drugs Advisory Committee Silver Spring, Maryland November 14, 2013 Good afternoon. My name is Diane Edquist Dorman, Vi Add to Reading List Source URL: www.rarediseases.org Language: English - Date: 2013-11-14 16:15:36 Drug discovery Orphan drug Non-24-hour sleep-wake disorder National Organization for Rare Disorders Rare disease Health Pharmaceuticals policy Medicine
56	News from Nord An update for our members and friends SUMMER[removed]NORD Hails FDA Safety Add to Reading List Source URL: www.rarediseases.org Language: English - Date: 2012-12-18 11:57:21 Food and Drug Administration Pharmacology Pharmaceuticals policy Epidemiology Drug discovery Rare Disease Day Rare disease Prescription Drug User Fee Act National Organization for Rare Disorders Health Medicine Pharmaceutical sciences
57	Contacts: Elizabeth Katz, Publisher, Neurology Reviews® Email: [removed[removed]Mary Dunkle, National Organization for Rare Disorders Add to Reading List Source URL: blog.rarediseases.org Language: English - Date: 2014-07-15 16:04:10 Medical diagnosis National Organization for Rare Disorders Health Medicine Epidemiology Rare disease
58	LYN14091 S.L.C. 113TH CONGRESS 2D SESSION Add to Reading List Source URL: rarediseaseday.us Language: English - Date: 2014-03-04 16:17:18 Pharmaceuticals policy Epidemiology Rare Disease Day Orphan drug Orphan Drug Act National Organization for Rare Disorders Cystic fibrosis Genetic disorder National Institutes of Health Health Medicine Rare diseases
59	www.eurordis.org Rare Disease Day Report on the 2009 Campaign Yann Le Cam Add to Reading List Source URL: download.rarediseaseday.org.s3.amazonaws.com Language: English - Date: 2013-10-04 04:29:31 Health National Organization for Rare Disorders Science Rare Disease Day European Organization for Rare Diseases Rare disease
60	National Organization for Rare Disorders (NORD), with funding by the patient organization, Cardiofaciocutaneous (CFC) International announces Research Seed Money for one, one-year grant ($30,000) for Add to Reading List Source URL: www.cfcsyndrome.org Language: English - Date: 2013-03-25 23:47:14 Cardiofaciocutaneous syndrome National Institutes of Health Rare disease National Organization for Rare Disorders Health Medicine Genodermatoses